Percy Jackson and the Olympians sounds like a lot of fun! I'll look into it and try and find it at the library next time I go. I'll let you know once I've finished it =]
I've always been a bit weird with emotions. I don't ever really get upset or angry or anything out of the norm. I'm not saying I'm apathetic - I remember being sad a few times in the last couple of years, and I was jealous of my little sister a lot back in Primary school. But things don't get to me like they do most people, anymore at least. I suppose I've trained myself to believe that if we're sad it's because we let ourselves to be sad. So because I never let myself be annoyed or angry or upset about my health, I'm not.
It's not like I'm holding the emotions in, I don't think, It's less complicated than that. Once I decide how I want to (or don't want to) feel about something, that's how I feel about it. (lol, and now you probably think I'm mad.)
I've improved more in my art and writing this year than I would have in three years had I not fallen sick, so there are upsides =] Plus, it's not likely to last any longer than five years, at the very, very most. The doctor thinks I'll be well enough to go to uni in two years time, which is exciting. I might even be able to do school part time next year.
Thanks though. A lot of people just say 'so, you're just tired all the time? So what? Come to my party anyway... you can sleep tomorrow' without understanding that fatigue is not even half of it ^_^ I think it's only the ones who visited me in hospital and for a few months after who actually believe that I haven't just run away, given up on school or just don't want to spend time with them anymore.
I won't complain if you TL;DR that =3
I looked up Spina bifida on wikipedia, and it sounds horrible! and pretty complicated? I'll admit to skimming over most of it (some of the long words and scientific terms made my head spin) but it sounds quite similar to ME, and like ME there's no cure. But the longest I've ever heard of someone having ME is 30 years, whereas Spina Bifida sounds as though you have it for life? Unless you have sugary... I'm lucky in that my mum is studying to become a herbal doctor, so I have her tinctures and pills to help. Has your mum looked into alternative medicine? I hope she copes okay. It must make life difficult ]=